Sunday, June 5, 2011

Boring = AWESOME

Hey, world. I'm still here!
It's coming up to almost a year since I've posted here. Gives me a good chance to reflect for a bit. So many changes, so much the same.

The major change: I've finally stopped taking the Millenium chemo that was causing me so much trouble. It was just becoming too much to deal with, with not enough payout. Plus, I had other options; if there were no other options, I probably would have kept sucking it up and taking it! Thank God for experimental medications, though; they keep coming out and keep saving my mind right along with my life. I'm now taking another trial medication of 3 pills, with one that has a name you'll actually be able to recognize, but probably not in this context! That one, which I take twice a day, is Celebrex - yes, that Celebrex, the arthritis medicine you see on TV commercials and magazine pages. In the Weird World of Science, Celebrex somehow helps both tight joints AND cancer genes. Go figure.

The other pill that I take once a day is Cyclophosphomide, and no, I do not expect you to know that one. Try saying it, though, it's fun. Cy-clo-phos-pho-mide. If you say it loud enough, you'll always sound precocious! Don't have much to say about that one. It's a small, round, white pill.
I take the Cyclo pill at noon (my general waking-up-in-the-morning time - I don't think that has anything to do with cancer, I think that's just me and my nocturnalism), one of the Celebrex pills two hours later at 2 pm, and the last Celebrex pill ten hours later, at midnight. I could have started this schedule at any time; for instance, I could have taken the Cyclo at 8 am, and the Celebrex at 10 am and 8 pm if I wanted, but I don't wake up at 8 am, and I'm still wide awake at midnight. It works for me.

To be honest, this entire chemo regimen is pretty boring. WHICH MAKES IT MY MOST FAVORITE CHEMO EVER. Never, ever, ever, do I take boring for granted anymore. It means there is nothing to complain about at all, and somehow, I am now taking a chemo that has left me with no complaints. NO COMPLAINTS. ABOUT CHEMO. PLEASE FREAK OUT WITH ME HERE. This chemotherapy has had no bad side effects. I don't get nauseous, I don't get weird pains or sores anywhere, I don't have any kind of blood/platelet loss, I don't even lose my hair; in fact, it's growing back in again. People have been telling me that I look healthier than they can remember ever seeing me, at least in a very long time. It's crazy. I can't believe I can say that I'm on a chemo and looking and feeling healthy. I mean, what is this?? This is 2011. This is good.

2 comments:

  1. Freaking out with you. Awesome post and I wish you intense boredom with your dream library.

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  2. Dear Hope,
    I'm just so happy that you are having some boredom in your life! Actually, I was bored and cleaning my "favorites" and was so surprised to see some new postings. You are just such and inspiration and it is just wonderful that you are doing so well these days!
    Christy tells me you had a cross-country trip this summer-Pete and I have done the AZ-NY route several ways 3 times now and we always have fun stopping at some sites along the way....hope you got to do the same!
    Love to all, Carolyn

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